In case you didn't know already: those of us with multiple sclerosis (MS) in Britain are invited to give info to the UK MS Register. Only if we've chosen to take part.

I do take part. They send me questionnaires about how I am. Sometimes, eg now, I've something new to report.

Is there something like this in your country? Do you take part?

Do you watch the telly series Elementary? How much of it you'll have had chance to watch depends on where you are.

A portrayal of disability in Series 4, Episode 15 Up to Heaven and Down to Hell caught my eye. ( Cut for spoilers )

If you have access to UK television, you might have seen last week's Panorama. It's still available to watch. Or you can read about it online.

This is about yet another miracle cure for multiple sclerosis (MS). Yes, I'm cynical. MS is peppered with miracle cures.

But this one might be worth taking seriously. Here's what the UK MS Society says ( Read more... )

The most useful sources of information about disability aren't always the obvious ones, are they?

For several years by now I've been filling in questionnaires for the UK MS Register. Mostly I do that in a public-spirited way, helping those good people with data about me. This time I noticed that the questionnaire 'Your medication' recognises ( Read more... )

Those of us who've been diagnosed with multiple sclerosis (MS), and who live in the UK, are asked to contribute to the MS Society's campaign in favour of our disability benefits. Here's the survey.

Please note that you don't have to be a member of the MS Soc to fill in this survey. Here's the email I got today. ( Read more... )

http://www.bbc.com/news/health-27323472?utm_content=bufferba09e&utm_medium=social&utm_source=facebook.com&utm_campaign=buffer

This Danish woman who has been stuck with MS has nonetheless run 366 marathons in one year. One per day, plus one, for a full year.

Of course, everyone's disease is different, but this makes me wonder whether I could even run part of a marathon... without any walls to cling to... without a wheelie walker... with only my legs and feet and shoes and ( Read more... )

This article posted by Sam on sunday (trigger warning: anti-crip) link to article got me thinking about the medical and social models of disability. While the medical model has obvious flaws, to me it feels like the social model can have flaws for some people too. I'm speaking as someone who has MS, so my disability isn't something I was born with ( Read more... )

Somebody told me to look up Hilary Freeman so I did. I'm liking her attitude and the way she makes her living by doing something that she *can* do ( Read more... )

I've just received this email ( Read more... )